james993
Hi mate, yes - their autoantibody results suggest it is small fiber neuropathy.
A moderator of the PSSD subredit did the same test here
This guy has some weird positive results here
Dr Healy who runs rxisk.org seems to be getting many reports of people testing positive for these antibodies.
My Thyroid is normal. Did a chest xray and my lungs and heart are healthy. The Dr proposed that the root cause of my problems was sleep. Idiot. I also ordered an Igg, Iga and Igm test, but tbh I haven't got a clue what I'm doing with that. I just saw that some people's Igg is elevated with PSSD and PFS. I get the result I think on Wednesday. I'll be meeting with a new Dr soon who seems quite knowledgeable about the gut microbiome and autoimmunity, so hopefully, she can help me with doing the tests I need.
Your itchiness is definitely a sketchy symptom of something wrong. Dr healy seems to think PSSD, PAS, PFS etc is small fiber neuropathy. I listened to a lecture yesterday here about small fiber neuropathy and the symptoms can manifest as many different things. Numbness in feet, legs, hands and genitals. It can manifest as pain also. Itchiness is also a symptom, and also your sense of smell can go out of whack - and you have that. In the lecture I sent, at 10:56 one slide mentions that this condition also affects cognition & emotion in the brain. SFN can cause synaptic dysfunction.
What are synapses?
Synapses are essential components of neurons and allow information to travel coordinately throughout the nervous system to adjust behavior to environmental stimuli and to control body functions, memories, and emotions.
Basically, it can wreak havoc on everything.
For me, I get numbness in my left leg and foot sometimes. Sometimes the odd mild pain in both legs. Also muscle weakness and muscle spasms. Surprisingly I still have a lot of strength and am still built quite well but holding heavy things for longer than 1 minute, my body just craps out and goes weak. My heart rate also shoots to like 120-130-140 BPM. Lastly, SFN can also cause GI issues. This reddit user cured their IBS by fixing their SFN. I definitely have GI issues but it's nothing major like IBS. Again, everyone's SFN manifests as different things, and everyone's SFN can be more severe in different areas of the body.
rxisk.org/sensory-receptors-small-fibres-and-neuropathy/.
@james993 Buy a heart rate monitor, the one you put on your finger. Experiment and see how your heart performs. If I lay down, my heart rate sits at around 90-95 bpm. When I stand up, it goes up to 120 bpm. This is a symptom of autoimmune small fiber neuropathy.
Last but not least - many long covid sufferers are experiencing the same symptoms as us, and PSSD, PAS, PFS sufferers. You might want to research those guys too since Dr Healy also suggests there's a connection. I knew from the get-go the rona vaccines were sketchy, which is why I didn't take it.
www.reddit.com/r/covidlonghaulers/comments/zi1npn/anhedonia_will_it_ever_improve/
The good news for today is - if our problem is SFN, then this problem isn't permanent. If you can get rid of the underlying problem, the nerves in our bodies will heal themselves. So are not permanently damaged.